Background

In resolution 78/171, the General Assembly requested the Secretary-General to submit a report on the social development challenges faced by persons with albinism. The report should consider:

• The specific needs of women and children with albinism
• Issues related to social inclusion, health, education, and employment
• Measures already taken by States and other stakeholders
• Recommendations for further action

Key questions and types of input/comments sought

Social development challenges faced by persons with albinism

Respondents may answer some or all of the questions below.

A. General information

1. According to the most recent national data, how many persons with albinism live in your country?
   Please provide figures or estimates and indicate the source.
2. How many persons with albinism are women?
   How many are children (according to the national definition of a child)?
3. Are there public or private institutions responsible for issues relating to persons with albinism?
   If yes, please list the most relevant ones.

B. Social inclusion

4. How would you describe the overall social and economic situation of persons with albinism in your country?
   In particular, please consider issues related to:
   • social inclusion and participation in community life;
   • stigma, discrimination, or harmful practices;
   • safety, dignity, and freedom from violence;
   • access to public services and social protection;
   • participation in decision-making affecting their lives.

C. Health

5. How would you describe the health situation of persons with albinism in your country? In particular:
   • Are dermatology and ophthalmology services accessible to persons with albinism?
   • Is sun protection (such as sunscreen, protective clothing or hats) readily available and affordable?
   • Is information provided on health risks associated with albinism, including risks related to sun exposure?
   • How is this information disseminated and communicated?

D. Education

6. What is the educational situation of persons with albinism?
   • Please provide data or information on school enrolment, attendance or completion.
   • What are the main barriers to education for children with albinism, if any?
7. Does the education system take into account the vulnerability to sun exposure of persons with albinism, for example by providing curtains or blinds, sufficient shaded areas, sunscreen, or flexibility in school uniforms to allow hats or sunglasses?
   Does the system also recognize low vision as a specific need and provide reasonable accommodation (e.g. large-print materials, assistive devices)?
8. Are there specific measures in place to promote the inclusion of persons with albinism in education, including measures to address bullying and discrimination among students?

E. Employment

9. What is the employment situation of persons with albinism?
   Please provide available data on employment or unemployment.
10. What barriers do persons with albinism face when seeking paid employment?
11. Are there specific measures in place to promote access to employment and inclusion in the labour market?

F. Recommendations

12. Please provide concrete, easy-to-implement, and low-cost recommendations that could positively impact the lives of persons with albinism at the regional or global level
    (e.g. provision of sun protection, awareness-raising or information campaigns).
13. Please provide any further recommendations, including longer-term or structural measures.

How inputs will be used?

Unless otherwise specified, all contributions received will be made available on the public OHCHR website.

Submissions should include the full name of the person or organization submitting the information. Please indicate if you wish to keep parts or the entirety of your submission confidential. If your submission includes names of victims and you wish for your submission to be public, please confirm that you have obtained the informed consent of these persons or their representatives and indicate whether the names and related information are in the public domain.

It should be noted that not all information shared will necessarily be reflected in the final report and that information falling outside the mandate will not be considered.