Summary

In the present report, the Independent Expert on the enjoyment of human rights by persons with albinism provides analyses on the right to health for persons with albinism, focusing particularly on how this right relates to skin cancer. She sets out the health concerns and determinants for persons with albinism and highlights the obligations of States to prevent and treat skin cancer, including preventing deaths. She further makes recommendations for ensuring the full realization of the right to health for persons with albinism. The Independent Expert also outlines in the present report activities undertaken in the implementation of her mandate over the period from July 2024 to July 2025, including collaborative work and research initiatives, community- and State-level engagements, and training programmes.